“Are you struggling with anything chronic or reoccurring? Periods of high unpredictable anxiety or depression?
Chronic anxiety and chronic depression among other things (vulnerability to abuse) are what made me choose to face this.
Really think about the anxiety and depression questions. If the answer is yes, and some of your symptoms line up with DID/OSDD then this is worth taking seriously.
As you probably know, there are no drugs to 'cure' this, only the right knowledge and tools. This means that until recently, many people with this condition have been fighting in the dark. And they have been losing. Because any drug-based therapy won't work.
Personal experience :
Before figuring this stuff out, I had no control over my internal anxiety or depression. Externally, I was a pro. I would talk in groups without flinching (while simultaneously burning on the inside). I could get through work days where I was depressed, while wearing a soft smile where necessary (and feeling dead on the inside). At some point I lost hope in living a truely happy life on the inside. On the outside no one but my partner at any given time would ever be able to tell that I suffer.
Knowing about my condition has been the only thing to help. I'm having a more calm life now because I'm closer to my parts. Not to say things were outrageous before. I was a pretty easy going person in the first place. But now we're happy (settled) inside because we've worked on finding tools and practices that encourage good communication inside (about feelings and needs).
Alexithymia
Something easy to start with is to think about one symptom that seems to be common in DID/OSDD but isn't common knowledge : alexithymia (missing or mixed up emotion(s)) If you did research already, you might have run across this symptom. It is linked to other conditions like autism. There are two kinds of alexithymia. One can have it since birth or one can create the pattern based on their environment. Someone with autism may be born with some degree of alexithymia. In contrast, from what I know, when it comes to DID/OSDD its usually the environmental kind. And last, a person can experience both kinds.
If you have it, you might not realize it until you think about it. I didn't realize it for a long long time. For me, two emotions I was obviously missing inside were 'excitement' and 'deep anger'. But it turned out they weren't gone. They just felt like other negative emotions to me:
excitement >> anxiety
deep anger >> deep depression
I had somehow repatterned these emotions by dissociating when I was younger and forgot about it.
Alexithymia exercise:
If you have a dulled or missing emotion (one you feel like you have to fake all the time) you can start by pinpointing it. Looking at your pattern, you can try to think honestly about why you may have swapped or lost these emotions.
For me, I was curbing my excitement because it was being used to hurt me at home when I was growing up. I got rid of the positive feelings, but overlooked getting rid of the negative ones. Over time, this pattern was auto-reinforced until it grew unmanageable and unhealthy. Upcoming exciting events would send me into either a misdirected hypo-manic or panicked state. I would not relate the panic to the upcoming event very much at all. But it was all linked.
This might also look like
intimacy >> terror
pride >> depression
disgust or fear (toward abuser) >> admiration or pity (for abuser)
Some people have a deep fear of intimate feelings because these feelings were used against them when growing up - this person may self sabotage relationships and push people away.
Some families make their kids feel bad about their accomplishments - this person may mysteriously feel very sad after they achieve something.
If a kid cannot escape an abuser, they may move their negative emotions into a positive or dominating realm to cope - this later moves into adulthood where new abusers may be encountered and are not attributed proper amounts of disgust or repelling feelings - toxic relationship victims.
This stuff counts for any environment where responsible and loving caregivers should have been, school too, not just home.
Finding even one missing or mixed up emotion is something to look at.
What everyone should know
I wish everyone could know this DID or not. Alexithymia, dissociation, and false beliefs hidden behind alters (example: I'm not good enough) are the driving forces behind this disorder. And it is serious. Being multiple on its own is not bad. The dissociative identity part is not bad. It's the disorder that slowly brings people down and needs real attention.
Alexithymia & alters:
The exercise above does not necessarily require communication with an alter, just soft and honest observation of your past. In the future, if you continue this work, you might find out who locked away a specific emotion.
Sometimes even these alters are pushed back and locked away deep inside by accident - along with the emotion(s) they hold. Sadly, it's like throwing out the fish with the fishbowl. This makes initial communication hard. But what you can feel from them is the negative emotions when they spill out... and the positive effect of properly addressing the underlying need.
For me, after rediscovering why I locked away my excitement, I was able to 'reassure' my wildly anxious thoughts (the alter that had the feeling locked away) by focusing on the correct feeling and cause. It still happens but now I am able to feel more calm and adjust healthily and more quickly. This part now feels safe enough to release this emotion under the right circumstances. I still don't feel full blown excitement, but we're working on it.
Same thing for anger. I've worked on allowing myself to feel and externally communicate anger with a focus on resolving the need at the source of my anger. No more long periods of depression. Better method of gaining security. No drugs.
Last words and insight
If this is your struggle too and you're just stepping into it, one thing I have to say is that you don't need to fear yourself. I realized that one common ground that every part of me has is that we are good and we want to feel good. None of us are bad. None of us want to live an unhappy or unsatisfying life. Even the most antagonizing self defeating voice turned out to be a part of me that was simply living a life where he was unheard and made to feel invisible. His messages were unfocused and negative before because he didn't know how to get through to me about what he needed.
Be kind to yourself. Be patient. Take things a step at a time. Feel free to ask any questions.”
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“this was super helpful, i know i started to stop caring about my relattionships with people after a trauma situation that happened a few years ago, and always felt weird about it once the co-front/passive influence/switch ended.
But also, u/throwaway_alien, you dont have to go for a diagnosis! my therapist and i decided to just focus on trauma therapy and working on communication with alters and all that without worrying about diagnosis and it honestly took so much pressure off of "figuring out whats going on". I was terrified of ending up witha diagnosis that i wouldnt know how to handle, but we knew our communication, cofronting, passive influence,etc. was all real through journalling and thankfully my therapist is accepting of all of it.
just do what u need to do, dont put too much pressure on urself, and dont feel like you need to figure it all out right away! It took me a full year to accept that my dissociation and alter communication indicated osdd-1(I'd always make up random excuses for it that, looking back now, didnt make sense lol) but yea just take ur time and take note of all the things you experience! sending lots of love and support! <3“